Bringing Preemie Home

When You're Spending the Holidays in the NICU

When You’re Spending the Holidays in the NICU

As you may know, Graham (our foundation’s namesake) and his sister Reece were born on Thanksgiving Day, so we know first-hand what it is like to spend the holidays in the NICU with your preemie instead of at home. We were lucky. Our friends and family seemed to understand how hard it was for us […]

When the NICU Journey Never Seems to End

Leaving the hospital without your preemie is hard enough. Facing an uncertain future is doubly hard. Many of us are told that we shouldn’t expect to bring our preemies home until they’ve reached their due dates. Some of us are pleasantly surprised to bring our babies home before that ballpark discharge day. But other parents […]

What I Learned from Our First RSV Season

What I Learned from Our First RSV Season

Today’s post comes from Graham’s Foundation preemie parent mentor Jessica – she’s available to talk about preemie feeding challenges, IUGR, g-tube issues, and breathing issues. My first RSV season with my son was full of learning. Here are the top 3 I learned while waiting for RSV season to end: 1)      RSV should stand for Ravenous […]

Premature Birth: At Odds With the Standard Growth Chart

Premature Birth: At Odds With the Standard Growth Chart

Today’s post comes from Linda, our Operations Coordinator! Like many of us, her preemie journey included issues around growth and weight gain so we’re happy to share her story in her own words. I thought our prematurity journey ended with our NICU stay.  Boy was I mistaken! I thought that since my daughters were big […]

The Gap Baby – An RSV Story

Most young children encounter what’s known as Respiratory Syncytial Virus, or RSV, before age two. It’s a common seasonal virus with flu-like symptoms and in otherwise healthy children it can be no big deal. In preemies, however, it can be literally deadly. Prevention is possible, but as this video from the National Coalition for Infant […]

Share This Infographic for RSV Awareness Month!

Share This Infographic for RSV Awareness Month!

Did you know that October is RSV Awareness Month? Awareness is so important because so many people just do not understand that Respiratory syncytial virus is so much more than a cold. In healthy grownups it may not be a big deal, but in medically fragile preemies RSV literally kills. We hope you’ll share this […]