Life After NICU

Prematurity Awareness Month Stories: Inspired to Do More

Prematurity Awareness Month Stories: Inspired to Do More

For Prematurity Awareness Month, we’re sharing Ruby’s story… Preemie Love was founded by Ruby Kimondo on May of 2015. Her motivation to start Preemie Love was driven by her own personal experiences with prematurity. Ruby is forty years old, married and with four sons. She experienced severe Preeclampsia in all four pregnancies leading to three […]

Prematurity Awareness Month Stories: Heartbreaks and Blessings

Prematurity Awareness Month Stories: Heartbreaks and Blessings

For Prematurity Awareness Month, we’re sharing Elisabeth’s story…   In April of 2015, we found out we were pregnant shortly after we found out we were adding a girl to our family of three! We were so excited and started planning and imagining our new life! Ean, our now 8 year old (who was 6 […]

What I Learned from Our First RSV Season

What I Learned from Our First RSV Season

Today’s post comes from Graham’s Foundation preemie parent mentor Jessica – she’s available to talk about preemie feeding challenges, IUGR, g-tube issues, and breathing issues. My first RSV season with my son was full of learning. Here are the top 3 I learned while waiting for RSV season to end: 1)      RSV should stand for Ravenous […]

Tips for Surviving the NICU with Older Kids at Home

Tips for Surviving the NICU with Older Kids at Home

Today’s post comes from our Preemie Parent Mentor, Daneen! She’s mentors parents coping with ROP and many other issues related to premature birth. To connect with her, click here. Before the NICU experience, I felt quite confident (well mostly) as a parent of our 9 children. Then the premature birth of our triplets happened and […]

Premature Birth: At Odds With the Standard Growth Chart

Premature Birth: At Odds With the Standard Growth Chart

Today’s post comes from Linda, our Operations Coordinator! Like many of us, her preemie journey included issues around growth and weight gain so we’re happy to share her story in her own words. I thought our prematurity journey ended with our NICU stay.  Boy was I mistaken! I thought that since my daughters were big […]

The Gap Baby – An RSV Story

Most young children encounter what’s known as Respiratory Syncytial Virus, or RSV, before age two. It’s a common seasonal virus with flu-like symptoms and in otherwise healthy children it can be no big deal. In preemies, however, it can be literally deadly. Prevention is possible, but as this video from the National Coalition for Infant […]

Share This Infographic for RSV Awareness Month!

Share This Infographic for RSV Awareness Month!

Did you know that October is RSV Awareness Month? Awareness is so important because so many people just do not understand that Respiratory syncytial virus is so much more than a cold. In healthy grownups it may not be a big deal, but in medically fragile preemies RSV literally kills. We hope you’ll share this […]