Life After NICU

When You're Spending the Holidays in the NICU

When You’re Spending the Holidays in the NICU

As you may know, Graham (our foundation’s namesake) and his sister Reece were born on Thanksgiving Day, so we know first-hand what it is like to spend the holidays in the NICU with your preemie instead of at home. We were lucky. Our friends and family seemed to understand how hard it was for us […]

When the NICU Journey Never Seems to End

Leaving the hospital without your preemie is hard enough. Facing an uncertain future is doubly hard. Many of us are told that we shouldn’t expect to bring our preemies home until they’ve reached their due dates. Some of us are pleasantly surprised to bring our babies home before that ballpark discharge day. But other parents […]

Coping with Preemie Parent PTSD

The prematurity journey is so different for all of us. One preemie or multiple babies, triumphs and devastating losses, challenging pregnancies, and other factors change how premature birth shapes parents’ experiences. The things we all face are stress, uncertainty, and fear. Would it surprise you to learn that even parents whose preemies face relatively short […]

What I Learned from Our First RSV Season

What I Learned from Our First RSV Season

Today’s post comes from Graham’s Foundation preemie parent mentor Jessica – she’s available to talk about preemie feeding challenges, IUGR, g-tube issues, and breathing issues. My first RSV season with my son was full of learning. Here are the top 3 I learned while waiting for RSV season to end: 1)      RSV should stand for Ravenous […]

Tips for Surviving the NICU with Older Kids at Home

Tips for Surviving the NICU with Older Kids at Home

Today’s post comes from our Preemie Parent Mentor, Daneen! She’s mentors parents coping with ROP and many other issues related to premature birth. To connect with her, click here. Before the NICU experience, I felt quite confident (well mostly) as a parent of our 9 children. Then the premature birth of our triplets happened and […]

Premature Birth: At Odds With the Standard Growth Chart

Premature Birth: At Odds With the Standard Growth Chart

Today’s post comes from Linda, our Operations Coordinator! Like many of us, her preemie journey included issues around growth and weight gain so we’re happy to share her story in her own words. I thought our prematurity journey ended with our NICU stay.  Boy was I mistaken! I thought that since my daughters were big […]

The Gap Baby – An RSV Story

Most young children encounter what’s known as Respiratory Syncytial Virus, or RSV, before age two. It’s a common seasonal virus with flu-like symptoms and in otherwise healthy children it can be no big deal. In preemies, however, it can be literally deadly. Prevention is possible, but as this video from the National Coalition for Infant […]