Parenting Preemies

Prematurity Awareness Month Stories: A Big Surprise!

Prematurity Awareness Month Stories: A Big Surprise!

For Prematurity Awareness Month, we’re sharing Sharon’s story… This is the story of our son Daniel Joseph Goodwin IV born on May 29th, 2017.  We had been trying to get pregnant for five years but after going to doctors, I was diagnosed with PCOS, a condition which made it hard to get pregnant.  We tried […]

Prematurity Awareness Month Stories: Inspired to Do More

Prematurity Awareness Month Stories: Inspired to Do More

For Prematurity Awareness Month, we’re sharing Ruby’s story… Preemie Love was founded by Ruby Kimondo on May of 2015. Her motivation to start Preemie Love was driven by her own personal experiences with prematurity. Ruby is forty years old, married and with four sons. She experienced severe Preeclampsia in all four pregnancies leading to three […]

Prematurity Awareness Month Stories: Heartbreaks and Blessings

Prematurity Awareness Month Stories: Heartbreaks and Blessings

For Prematurity Awareness Month, we’re sharing Elisabeth’s story…   In April of 2015, we found out we were pregnant shortly after we found out we were adding a girl to our family of three! We were so excited and started planning and imagining our new life! Ean, our now 8 year old (who was 6 […]

Prematurity Awareness Month Stories: The Power of Positivity

Prematurity Awareness Month Stories: The Power of Positivity

For Prematurity Awareness Month, we’re sharing Kimber’s story… My son, Ryder, was born at 28 weeks on August 6th, 2017. We spent two very long months in the NICU. I started having what I remembered to be contractions but they were accompanied by HEAVY bleeding. I drove myself to the hospital with no known complications […]

Prematurity Awareness Month Stories: Losing the Birth Experience You Wanted

Prematurity Awareness Month Stories: Losing the Birth Experience You Wanted

For Prematurity Awareness Month, we’re sharing Ivy’s story… During my first pregnancy I had all of these incredible visions of what giving birth would be like. I was convinced I’d go past my due date, I’d labor in water, I’d have my bags packed with everything I needed, and most importantly I’d get to spend […]

What Makes Graham's Foundation Special

What Makes Graham’s Foundation Special

Parents of preemies describe the experience of having an infant in the neonatal intensive care unit, whether for four weeks or four months, as stressful, frightening, exhausting, and isolating. For many, the NICU journey represents both a family and a financial crisis. Babies born extremely premature are often in critical condition with health problems that […]

What I Learned from Our First RSV Season

What I Learned from Our First RSV Season

Today’s post comes from Graham’s Foundation preemie parent mentor Jessica – she’s available to talk about preemie feeding challenges, IUGR, g-tube issues, and breathing issues. My first RSV season with my son was full of learning. Here are the top 3 I learned while waiting for RSV season to end: 1)      RSV should stand for Ravenous […]

Tips for Surviving the NICU with Older Kids at Home

Tips for Surviving the NICU with Older Kids at Home

Today’s post comes from our Preemie Parent Mentor, Daneen! She’s mentors parents coping with ROP and many other issues related to premature birth. To connect with her, click here. Before the NICU experience, I felt quite confident (well mostly) as a parent of our 9 children. Then the premature birth of our triplets happened and […]

Premature Birth: At Odds With the Standard Growth Chart

Premature Birth: At Odds With the Standard Growth Chart

Today’s post comes from Linda, our Operations Coordinator! Like many of us, her preemie journey included issues around growth and weight gain so we’re happy to share her story in her own words. I thought our prematurity journey ended with our NICU stay.  Boy was I mistaken! I thought that since my daughters were big […]

The Gap Baby – An RSV Story

Most young children encounter what’s known as Respiratory Syncytial Virus, or RSV, before age two. It’s a common seasonal virus with flu-like symptoms and in otherwise healthy children it can be no big deal. In preemies, however, it can be literally deadly. Prevention is possible, but as this video from the National Coalition for Infant […]