Advocating for Preemies

Prematurity Awareness Month Stories: Inspired to Do More

Prematurity Awareness Month Stories: Inspired to Do More

For Prematurity Awareness Month, we’re sharing Ruby’s story… Preemie Love was founded by Ruby Kimondo on May of 2015. Her motivation to start Preemie Love was driven by her own personal experiences with prematurity. Ruby is forty years old, married and with four sons. She experienced severe Preeclampsia in all four pregnancies leading to three […]

What Makes Graham's Foundation Special

What Makes Graham’s Foundation Special

Parents of preemies describe the experience of having an infant in the neonatal intensive care unit, whether for four weeks or four months, as stressful, frightening, exhausting, and isolating. For many, the NICU journey represents both a family and a financial crisis. Babies born extremely premature are often in critical condition with health problems that […]

The Gap Baby – An RSV Story

Most young children encounter what’s known as Respiratory Syncytial Virus, or RSV, before age two. It’s a common seasonal virus with flu-like symptoms and in otherwise healthy children it can be no big deal. In preemies, however, it can be literally deadly. Prevention is possible, but as this video from the National Coalition for Infant […]

To the Mothers Who Donate Their Breast Milk

To the Mothers Who Donate Their Breast Milk

To the mothers who donate their breast milk: I want you to know that your efforts were not  in vain! There are mothers out there who are thankful… like me.  

LEO - Born at 24 weeks, 2 days, 1 lb, 6 oz – 107 Days in NICU

Preemie Moms Talk About When They Felt Like Parents

Your role as a parent in the NICU is unique and irreplaceable, but it doesn’t always feel that way. When your preemie is ill, it can seem like it’s the doctors and nurses who are playing the number one role in your baby’s life while you watch from the sidelines. Many parents of preemies feel […]

Nick Hall Shares His Vision for the International Neonatal Consortium

Nick Hall Shares His Vision for the International Neonatal Consortium

Graham’s Foundation president and preemie parent Nick Hall recently shared his vision for the International Neonatal Consortium (INC) in the organization’s inaugural newsletter. You can read Part I here: Part I and Part II of Nick Hall’s interview will be available at the INC web site (https://c-path.org/programs/inc/).

What Parents Think About Clinical Trials in the NICU

What Parents Think About Clinical Trials in the NICU

Over the years, Graham’s Foundation’s mission has evolved to include advocacy on behalf of parents of preemies – behind the scenes, we’re not only championing family-centered care in NICUs but also finding the data to back it up. One area that hasn’t been thoroughly looked at is clinical trial participation in the NICU. Obviously parents […]

Deanna Fei on How Distressed Babies are Our Babies and the Inspiration Behind Girl in Glass

In October 2012, my second child arrived nearly four months premature. She weighed one pound, nine ounces. None of her vital organs were ready for the world outside my body. Her face and body were obscured by tubes and wires. Her skin was reddish-purple and not quite intact; one doctor described it as “gelatinous.” The […]