Advocating for Preemies

Nick Hall Shares His Vision for the International Neonatal Consortium

Nick Hall Shares His Vision for the International Neonatal Consortium

Graham’s Foundation president and preemie parent Nick Hall recently shared his vision for the International Neonatal Consortium (INC) in the organization’s inaugural newsletter. You can read Part I here: Part I and Part II of Nick Hall’s interview will be available at the INC web site (https://c-path.org/programs/inc/).

What Parents Think About Clinical Trials in the NICU

What Parents Think About Clinical Trials in the NICU

Over the years, Graham’s Foundation’s mission has evolved to include advocacy on behalf of parents of preemies – behind the scenes, we’re not only championing family-centered care in NICUs but also finding the data to back it up. One area that hasn’t been thoroughly looked at is clinical trial participation in the NICU. Obviously parents […]

Deanna Fei on How Distressed Babies are Our Babies and the Inspiration Behind Girl in Glass

In October 2012, my second child arrived nearly four months premature. She weighed one pound, nine ounces. None of her vital organs were ready for the world outside my body. Her face and body were obscured by tubes and wires. Her skin was reddish-purple and not quite intact; one doctor described it as “gelatinous.” The […]

Increased Investment in Preemie Outcomes is Throwing Good Money after Good

There’s no denying that prematurity is an epidemic. Across the globe, the rate of preterm birth ranges from 5% to 18% of babies born too soon. Globally, prematurity is the leading cause of death in children under the age of 5. And in almost all countries with reliable data, preterm birth rates are increasing. It’s […]

Preemie Parents, Trust Your Instincts

Preemie Parents, Trust Your Instincts

So these past few weeks have been tough. We noticed that Dusty isn’t quite where other children his age are developmentally. I guess that’s one of the parts of having a preemie. We made the decision to schedule a reevaluation for him with the rehab center he went through when he was first born. I […]