Preemie Parent Voices

LEO - Born at 24 weeks, 2 days, 1 lb, 6 oz – 107 Days in NICU

Preemie Moms Talk About When They Felt Like Parents

Your role as a parent in the NICU is unique and irreplaceable, but it doesn’t always feel that way. When your preemie is ill, it can seem like it’s the doctors and nurses who are playing the number one role in your baby’s life while you watch from the sidelines. Many parents of preemies feel […]

Tips for Handling a Long Distance NICU Journey

Tips for Handling a Long Distance NICU Journey

This post was shared with us by preemie mom Serena, one of our Preemie Parent Mentors. To share your own story or advice to help new parents of preemies cope with the reality of premature birth, click here. For all of us preemie parents, the birth of our child(ren) did not go as expected, nor […]

Parents of Preemies Talk About Their Introduction to the NICU

Parents of Preemies Talk About Their Introduction to the NICU

Recently, on Facebook, we asked parents of preemies a simple question: did you know the NICU before your baby was admitted? As in, did you know where and what the NICU was? Was it part of the prenatal hospital tour? Did your care provider talk about premature birth and the possibility that your baby might […]

Don’t Expect Hospital Upgrades to Improve Family-Centered Care in the NICU

A couple of years ago I was on a work trip in California, and while most of the country was still in the economic doldrums, I noticed quite a bit of new construction taking place. Upon closer inspection I realized that many of these buildings were going to become new hospitals. Hospital executives across the […]

Understanding Prematurity – How to Talk to Parents of Preemies

A Resource for Family, Friends, and Supporters When a baby is born early and needs the kind of care only a neonatal intensive care unit can provide,it can be so hard to know what to say to the mom and dad standing watch over the isolette. When I was in the NICU with my daughter […]

How My Preemies Taught Me to Fly

How My Preemies Taught Me to Fly

Our twins, Reece and Graham, were born 15 weeks premature on Thanksgiving day 2006. Our son did not catch the breaks you need when you’re born that early and after 45 days, we had to say goodbye. Our daughter spent 119 days in the hospital before we finally brought her home. As preemie parents know, […]

A Preemie Mom to Preemie Daughters

A Preemie Mom to Preemie Daughters

This story was shared with us by preemie mom Emily. To share your own story, click here. The NICU has been with me since the day of my birth. I’ve known that colloquial acronym for the neonatal intensive care unit for as long as I’ve known a child’s basic vocabulary, because I spent ten weeks […]

Parents of Preemies Share Their Preeclampsia Symptoms

Parents of Preemies Share Their Preeclampsia Symptoms

For Preeclampsia Awareness Month, we asked our community of preemie moms to share the symptoms that they had. Some looked a lot like normal pregnancy symptoms while other preeclampsia symptoms were definitely more alarming! And in few cases, preeclampsia was diagnosed with no symptoms at all! While preeclampsia is relatively rare, it’s important to watch […]