BLOGS:Addison and Riley's JourneyAll About the Benjamin Baby
Benjamin, an amazing micro-preemie, was born at 23 weeks and 3 days gestation on February 7th, 2011 – weighing in at 1 lbs, 12 oz. He is a real fighter and has beaten so many odds already, including PPROM at 19 weeks gestation. Allie and Ivy's Blog
My name is Allie, and I am a micro preemie mom.Anastasia Elise Miracle Baby, 25 week preemie
Anastasia was born at 25 weeks gestation (15 weeks early) after I experienced PROM (Premature Rupture of the Membranes) at 20 weeks into the pregnancy. Anastasia weighed a mere 1 lb. 13 oz. That made her an extreme (or micro) preemie. Baby Blueberries!Baby Pierce
Pierce Nikolas Franks was born on April 12, 2011 at 23 weeks 5 days gestation.
Our little guy's marathon journey in the NICUCheering On Charlie
The Post-NICU struggle of a former micro-preemie as documented lovingly by one of her biggest fans... her mom.Confessions Of A CF Husband
My name is Nathan. My wife, Tricia has Cystic Fibrosis (CF) and had been preparing for a double lung transplant until we discovered we were pregnant. Surviving a premature birth, double lung transplant and lymphoma is just the beginning of our story.Diary of a SAHM DadEarly Bird TwinsElizabeth Ann
Born on December 17, 2004 at 05:38. She weighed 1 pound and 10 ounces and had a pretty good cry on the way out.Flotsam
My daughter was born less than a month later after a stint of hospital bedrest, during which they never gave me enough sausage for breakfast, and after which I will never again take for granted the luxury of wearing clothes that do not tie in the back. Simone spent 96 days in the NICU and almost died, but in the end, she didn’t.
His Middle Name
After my son was born 14 weeks premature, my husband and I were desperately searching for any information or resources out there for parents of preemies. His Middle Name has been started with the hopes of creating a sense of community among parents of premature children while providing advocacy, education and awareness and most importantly, a source of inspiration and hope.
Holding On To HopeImpressions
I began this blog as a way to tell the story of the preemie journey of our son, born at 28 weeks gestation. It has become a chronicle of sorts, a way to process my impressions of everyday life, of being a wife and mother, of working and playing, loving and believing.It's a Preemie Thing BlogJack Ryan's JourneyJoseph at HomeJ-ust m-e
I'm a Mom to 4 children here and 2 in Heaven! Liam is a surviving twin micro-preemie born at 24 weeks/0 days weighing 1 lb 5 oz at birth. My blog was started as a way to highlight the ups and downs of homeschooling but turned into a lifesaving journal of our prayer requests for Liam during his hospital journey.Kayla AimeeKeeping Up with the KimmelsKenji & the Green Paci
In 2007 we were shocked to learn we were having twin girls and if that wasn't crazy enough we only had 6 weeks to prepare (if that's even possible). Yes, you heard me right they decided to make their grand entrance at 26 weeks. Then in 2009 we decided to make life a little more exciting and we welcomed Emmitt Vaughan to join us. Though life has been a roller coaster we wouldn't have it any other way!
Life With Eliza Grace
Eliza Grace was born on March 15, 2006, at 26 weeks, 4 days, weighing 1 pound 4 ounces and measuring just 11.5 inches long. She is the light of my soul and this is the story of our life in the big city.Life With Jack
The road of parenting a micropreemie is never easy, but it is oh so worth it. If you have a preemie or want to learn more about prematurity, I'd like to welcome you to stick around awhile. Jack is pretty much the most special boy and I want the world to know!Littlemanbig: A Micropreemie AdventureLogan's Sisters
I unexpectedly gave birth at 23 weeks to micro-preemie twins on August 27, 2007. Olivia Paige weighed just 1 lb 1.5 oz and was 11.5 inches long. Logan William weighed just 1 lb 1.75 oz and was 11.5 inches long. Our sweet Logan passed away after 1 month and 1 day. After 105 days, we were able to bring Olivia home. She is our miracle, our survivor, our joy...Lynsey the Mother DuckMama TayMalena Lola - Tiny, Mighty & Fabulous
Our baby girl was born at 25 weeks on April 25, 2011. She is now a thriving toddler with a tracheostomy. We have had a long, hard and amazing journey and I recently started writing our story. I would love to share it with other parents who may be going through a similar situation.
Maravy Twin WatchMicro Preemie Twins: The Story of Holland & Eden
Twin girls Holland Mirabell & Eden Deanna were born prematurely at 24 weeks 3 days gestation on July 31st, 2004, 3:02 am. At birth Holland was 1 lb 3.5 oz, 11.5", Eden 1 lb 5.5 oz, 12". This is their story...Minnetonka Morrow MomentsNot So Jumbo JackOur Little Acorn
Acorn, our former 27 weeker, who spent most of his first year and a half on a ventilator. He's got a tracheostomy, a g-tube, and a wicked sense of humor. Our Little VirginiaOur Miracle Boy
This is the amazing story of our micro preemie, John Craig. He was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him!
Our StoryOur Valentine's Day Surprise
Just your typical 20 something stay at home twin momma. Transitioning from a former Infertile turned Preemie/NICU Mom, to a mom of Toddlers (say what?) Follow us on our journey and day to day happenings.Papas of Preemies
Joel Brens wanted raise awareness about prematurity and all things encompassing life in/after NICU for fathers so he founded the Papas of Preemies blog, where dads share their stories in their own words. Preemie Babies 101Preemie Beth
Beth was born 14 weeks too early on January 31, 2006 and weighed 1 lb and 15 oz. Now a healthy little girl, this blog discusses her journey through the NICU and now as a "graduate" navigating the world with her family at her side and her twin sister, Julianne, watching over her from Heaven.
Preemie Resource Blog
Purty Little FowlerRollin' Down the River with Proud Mary
We began our blog in the spring of 2005 to provide updates from the NICU when Ben arrived at 23 weeks gestation. Over the years our blog evolved from primarily medical updates for family & close friends to a general family site through which we met so many incredible online friends.
The Buckley Family
This is the story of our triplets who were born at 26 weeks on 7/17/07 and were finally reunited after 4 1/2 long months in the NICU. They are our little miracles and they continue to amaze us everyday!The Continuing Adventures of SuperPreemie
This blog chronicles the adventures of our daughter Shoshanna, who was born at 25 weeks, 3 days gestation, weighing 1 pound, 13 oz. She spent 89 days in the neonatal intensive care unit and continuing care nursery, and came home two weeks before her due date.
The Harris Family Blog
On Jan. 10, 2008 our twins were born at just 24 weeks 0 days. Our son Braden is now 3 yrs old and is our little hero. His twin sister Kaleigh passed away on Jan 23, 2008. We miss her and think of her daily. Our 3rd child Grayson was born on May 24, 2010 at 39 wks.
The Joneses BlogThe Trousdell FiveThe Tomecko EchoThis Journey Our Life
Lea was born at 29 weeks, weighing 1 lb., 14 oz. Lea's early birth taught me so much about faith, and has made me passionate about supporting other preemie parents. Please visit our blog, and E-mail us with any questions, concerns or for any advice!Trevor W. CampbellTwo Pink Peas in a PodVeronica's Journey
Veronica Katherine entered this world unexpectedly on April 18, 2011. Being born at only 24 weeks gestation, Veronica was designated as a "micro preemie", and weighed only 1 lb, 4 oz. This blog was created to keep family and friends updated on Veronica's progress. Hopefully, this will also be a place where Veronica can visit when she is older so that she may experience her incredible journey.
BOOKS:A Pound of Hope
The true story of the heart-wrenching struggle for survival, devastating financial loss, and the power of hope that comes with extremely premature babies born nearly four months early. Good Things Come in Small Packages (I Was a Preemie)
The story of one little person's journey of realization as he discovers his difficult beginnings, and the real meaning of love. Suitable for children ages 0-8. Empowered Preemie Moms
Features stories from real preemie moms and survival tips based on their stories.For Those Who Hold the Littlest Hands
A complimentary resource for NICU Parents from the NICU Parent Support Site. In this free eBook NICU, preemi parents can find information, support and resources for understanding the NICU and ICU.
As a specialist in high-risk obstetrics and the father of a child born prematurely, Wolfberg explores the profound questions raised by such fragile beginnings, both from the front lines of the NICU and from his daughter’s bedside.Half Baked
From the indignities of infertility treatments to managing bedrest and parenting a preemie (how does one wrangle an oxygen tank while changing a diaper?), Alexa recounts her rocky road to motherhood with a uniquely sharp, funny, yet poignant voice.Miracle Birth Stories of Very Premature Babies
Heartwarming yet realistic, these stories inspire even as they portray the families' attempts to cope with losing the typical birth experience, listening to insensitive remarks, going home without their babies, and communicating with medical professionals. This is a powerful, love-filled, personal resource for parents of tiny infants.My Brother Is a Preemie/My Sister Is a Preemie
This short book can serve as a light introduction to the NICU and foster further discussion with your other children or young relatives. It is best read together, ideally before a visit to the NICU.No Bigger Than My Teddy Bear
Valerie Pankow's well written and illustrated account of her son's reactions to his premature brother offers a child's eye view of the intensive care nursery--one which will help inform and support other children with a teddy bear-sized new baby.Parenting Your Premature Baby and Child
Within the pages of this comprehensive guide, parents will find compassionate support, practical suggestions for coping and adjusting, and advice that empowers them to handle an array of emotions.Preemie: Lessons in Love, Life, and Motherhood
The first time Kasey was wheeled into the Neonatal Intensive Care Unit (NICU), nothing prepared her for what she saw: a tiny, fragile baby in a tangle of tubes and wires. All at once, Kasey was confronted with a new and terrifying reality that would test the limits of love, family, and motherhood.
The Preemie Primer
A comprehensive resource, covering topics from delivery, hospitalization, and preemie development to parenting multiples, handling health issues, and finding special-needs programs.
Preemies: The Essential Guide for Parents of Premature Babies
Offers up-to-the-minute information on medical care in a warm, caring, and engaging voice.Preemie the Explorer
“Preemie the Explorer: The Little Rocket Who Took Off Too Soon” is designed to help children understand that being different and confronting social challenges, can be like a wild, exciting ride through space! Our hero, Preemie the Explorer, is a cheeky, lovable rocket who is in the process of being built when a frightening storm forces him to take off before his outer shell and turbo thrusters are attached. This is an intergalactic preterm birth!
Hand to Hold
Hand to Hold, a nonprofit organization, carefully matches seasoned parents of preemies (Helping Hands) with new parents in need of support. These one-on-one relationships inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely familiar with the experience of preterm birth, life in the NICU, a child born with a special health care need, loss of pregnancy, and/or infant loss.
Jlyasdi's Journey- Christian Based Preemie Service
Jlyasdi's Journey is a non-profit organization that is a Christian based preemie service. Our mission is to provide encouragement and support such as lodging, food, travel expenses, and prayer pagers to Neo-Natal Intensive Care Unit (NICU) families.
Linky Dink, Micro-Preemie Miracle
Lincoln was born at 25 weeks, 1lb 8.5oz... he has extreme short gut syndrome and a few other preemie complications but is a happy, beautiful, and amazing little boy!Little Tait Foundation for Preemie Aid
The LTFPA is a non-profit organization founded to help the families of preemies with the financial burdens accompanying the arrival of their new blessing.
Micro Preemie Moms
A group of Mothers of Micro Preemie children (children born weighing approximately under 2 pounds). Membership to this group is Limited to Micro Preemie Moms/Dads. In your request to join, please indicate some birth details about your preemie.Not Even A Bag of Sugar
My blog shares the journey of my son Joseph, born at 27 weeks weighing 1lb 7oz - not even a bag of sugar!Papas of Preemies
Lending a fathers voice in the world of prematurity - a place where dads can connect and share their stories.
Parents of Micropreemies
Just a place where parents of very early preemies can talk about their kids, ask questions, share pictures, etc. Praying for Madilynn Rose
On June 14th, 2010 @ 12:50am Miss Madilynn Rose Haefs made her debute completely unexpected at 23weeks 5days gestation.
Preemie Babies 101
A blog for parents and family of preemie babies! I talk about everything from high-risk pregnancies to having preemies, spending time in the NICU, bringing baby home, raising a preemie, and much more. Come read parent stories and share your experiences with us!Preemie Mama
Preemie Mama is a blog dedicated to life after a premature birth. As parents of preemies, it's hard to find the information we need to handle life in a completely different world. I want To educate people about what it is like and to help those who have been there to heal.
This page is set up to connect preemie parents around the world! It is managed by two preemie moms who know the ups and downs of having a preemie in the NICU. Post your story, comments, child's development...for others to learn from and connect to! Preemie Parents Foundation
The Preemie Parents Foundation is a non-profit (501C3 - pending) organization dedicated to providing the parents and caregivers of premature babies with the tools, resources and support needed to take this unexpected journey from a place of bewilderment to a place of empowerment.
Preemie Power is a movement. It's all about celebrating the strength of the tiniest heroes, connecting families in a meaningful way, and informing the community about prematurity.Preemie Prints
Welcome to Preemie Prints, a 501(c)(3) non profit organization, offering information, support, photography, NICU gift bags, and prayer to moms and families with a premature baby.Project Sweet Pea
Helping families who have a child in the intensive care unit by providing care packages that offer a touch of comfort while building cherished memories.Sweet Pea Project
The Sweet Pea Project offers comfort, support and gentle guidance to families who have experienced the death of a baby. The Alyboo and Izybee Foundation
We are a non~profit which makes handmade items for babies in the NICU and we also provide support to their families during their stay. For information or to volunteer visit our website: www.abibf.org
The Preemie Palace
From small beginnings come great things. To provide support for any parent of an infant born before 37 weeks gestation or survivor of a long NICU stay.GENERAL
Our site is dedicated to parents who want to stay current on the ever-changing world of parenthood. We research and post information about important issues, interesting products, helpful tips, inspirational stories and celebrity parents. I am the stay at home mom of two boys, 3 and newborn. Before my first son was born at 24 weeks I did extensive research on anything baby. That is when I created Growing Your Baby so that all parents could benefit from the research I do. With that being said, I have a special place in my heart for babies who were born early and my readers will find many articles on this site about premature infant health and amazing survival stories.
The only Web site backed by 60,000 pediatricians, HealthyChildren.org offers trustworthy, up-to-the-minute health advice and guidance for parents and caregivers, along with interactive tools and personalized content. Innovative Mommas Inc.
The Original Baby Ankees have been created as a soft seamless band that easily slides on the foot, over top of your babies sleeper, covering their ankles. This will help keep your babies feet inside their sleeper. Most sleepers are either too big or too wide in the feet, this makes it difficult for a baby to move naturally.Snoedel
Snoedel is the original sleeping and bonding aid for babies completely handcrafted in the United States by moms, grandmothers, and female college students under "newborn-safe" conditions (environments free of tobacco and perfumes.)MEDICAL EQUIPMENT
Neotech is a leader in the development of innovative neonatal, pediatric and respiratory products that can help patients globally. They specialize in creating skin friendly products that are ideal for neonates.
Philips Children’s Medical Ventures
Philips Children’s Medical Ventures is a leading provider of education services and developmentally supportive products for premature babies, healthy newborns and hospitalized infants.Prolacta
Prolacta Bioscience is the pioneer in human milk-based nutritional products for premature infants in the neonatal intensive care unit (NICU). Because many premature infants require additional nutrition than mom’s or donor’s breast milk can provide, Prolacta has developed the only human milk-based human milk fortifier for babies born less than 1250 g at birth. Prolacta’s fortifier is the only way to ensure these babies get the benefits of a 100% human milk-based fortified diet. Mothers who have a surplus of breast milk can help fragile infants by donating their extra breast milk through one of Prolacta's affiliate milk banks, to be made into potentially life-saving formulations. Visit www.prolacta.com for information on premature infant nutrition and how to donate extra breast milk.PREEMIES
A site with a number of forums including loss support, support for parents of preemies, parenting support for families with a child with special needs, and trying to conceive after a loss.Baby First
Provides clinical knowledge and educational resources to support medical professionals and parents of premature infants.Early Buds
Early Buds provides current and useful information, personal stories and product samples specifically for premature babies and their parents in our "prem packs".Hand to Hold's Spanish Language Resources
Si usted tuvo un bebe prematuro, o su infante tiene problemas de salud, usted no está solo. Hand to Hold esta aquí para darle el apoyo y toda la información que necesite durante este período difícil.Inspire
Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups.KidsHealth
Common diagnosis in the NICU.Micropremature Babies: How Low Can You Go?
Since the mid-90′s, our newest minority consists of the tiniest humans, born weighing less than two pounds. This award-winning 43 minute film describes the psycho-social impact of such a birth upon the family unit. MicroPreemies.com
A place of support for parents of very early preemies.
NICUniversity provides neonatologists and other members of the professional neonatology community with continuing education credits, as well as cutting edge neonatology research and information.Parents of Premature Babies Inc. (Preemie-L)
A non-profit foundation supporting families with children born six weeks or more before due date.
Preemiehelp is a community hub and expert resource, a place where families and friends come together to find easy to understand information, support, and solutions for anyone requiring anything related to preterm birth.
A place created for parents and loved ones of premature infants, and women experiencing a high risk or complicated pregnancy. The site is devoted to supplying information, support (chat and email discussion list), mall, bookstore and a variety of resources.
A place for fellow Preemie Mom's who blog to share about our children. The membership of this group is limited to Parents of (children who were under 2 pounds at birth).preemieschat
PreemiesChat is a gathering place to meet other preemie parents and friends of our precious preemies.PreemieVoices
Sponsored by MedImmune, Preemievoices.com is a web site housing information on activities, news, current affairs, legislative issues, links and resources within the prematurity community.PreemieWorld
Premature Baby Journal
PreemieWorld was created to help bridge the gap between parent and professional in the NICU, at home and beyond. With books, videos, and other products and tools, the hope is to make everyone’s life just a little bit easier as the “new normal” is created in the life of the preemie and his/her family.
Having a child that is born premature can be a very traumatic rollercoaster ride and this app created by the Australian charity the Life’s Little Treasures Foundation provides a place to store all your baby’s medical progress as well as a journal section for you to record your feelings.
Neonatal nurse, mother of a preemie and author Dianne Maroney offers information and resources about prematurity and infant care for parents and medical professionals.Prematurity
This parent-run website features many articles on prematurity and preemie care, book reviews, directory of stores selling preemie items, a section for celebrations and milestones and more. They also have a listserv for parenting young preemies and another for parents with older preemies available.Preterm Labor and Birth
Information from the National Institute of Child Health & Human Development.Share Your Story
An online community developed by the March of Dimes for NICU families. The site includes online discussions, places to start blogs, and a way to make friends.PREGNANCY
An interactive parenting network site that provides support for parents at every stage of their child’s development – from pregnancy to “big kid” and beyond. I-am-pregnant.com
I-am-pregnant.com is an info community where parents and parents-to-be can read, learn and talk about anything related to young babies. You can read and talk about babies, pregnancy and birth in over 500 forum topics, ranging from bathing your baby to pregnancy tests.
A website giving you the inside scoop on pregnancy.REMEMBRANCE
Calvin’s Hats are hand knit for babies who are born too early to survive. When we lost our son, Calvin, we discovered there is little clothing tiny enough for babies that are born too early. Although the hospital offered us preemie-sized hats for our son's small head, they were still too big. Center for Loss in Multiple Birth
Our mission is to provide parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood. It is also to assist extended families, caregivers, twins and multiples organizations and others who are seeking to understand and support the needs of parents with a multiple birth loss.Dignity Memorial
Acknowledging that nothing can ease the pain of losing a child or grandchild, we offer financial relief for those who choose a Dignity Memorial Burial or Cremation Plan. We will provide funeral or cremation services, at no cost, at any Dignity Memorial provider. If there is not a Dignity Memorial service provider in your area, you can call 800-343-4464, and we will work to find someone near for help.
Infants Remembered In Silence , Inc.
IRIS is a 501(c) 3 non-profit organization that is dedicated to offering support, education and resources to parents, families, friends and professionals on the death of a child in early pregnancy (miscarriage, ectopic pregnancy, molar pregnancy, etc) or from stillbirth, premature birth, neo-natal death, birth defects, sudden infant death syndrome (SIDS), illness, accidents, and all other types of infant & early childhood death.Lynda P Haddon Prenatal Education and Bereavement Support
Although a joyous time, there are sometimes risks in multiple births. Hence this Web Site also offers bereavement support for parents who have lost one, more or all of their multiple birth children during pregnancy or in infancy.
Miscarriage Matters, Inc is an organization that was founded in Chicago, Illinois. Our team is here to provide support to the survivors of miscarriage, stillbirth and early infant loss, while increasing awareness around these devastating and heartbreaking issues.
The MISS Foundation is a 501 (c) 3, volunteer based organization committed to providing crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities.
Mommies Enduring Neonatal Death
M.E.N.D. is a Christian, non-profit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death.
Newborns in Need
Headquartered in North Carolina, Newborns in Need offers a variety of programs including Bereavement Support which consists of a complete layette for child who has passed away and memorial items in remembrance.
Now I Lay Me Down to Sleep
To introduce remembrance photography to parents suffering the loss of a baby with the free gift of professional portraiture. We believe these images serve as in important step in the families healing process by honoring their child’s legacy.Share Pregnancy and Infant Loss Support, Inc.
The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life.
Tiffany and Stephen Bowen started Skyler’s Gift Foundation to provide financial support to families in need that have lost their newborn infants from complications of premature birth. They believe no one should have to face this loss alone and especially without the needed resources in place.
The Compassionate Friends
The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
To Write Their Names in the Sand
A beach memorial for young lives lost.SUPPORT
Caiden's Hope, a federally recognized 501(c)(3) charitable organization is dedicated to helping provide travel arrangements for families enduring the hardship of a child undergoing long term medical care in a hospital neo-natal intensive care unit.
CaringBridge websites offer a personal and private space to communicate and show support, saving time and emotional energy when health matters most. Learn more about creating your own website that gives recognition to Graham’s Foundation.
HomeHealthCareAgencies.com was created to give consumers a resource where they can research medicare certified home care agencies, private duty home care companies and hospice care services in their area, as well as learn about various state regulations and other home health care information. Isabella's Giraffe Club
Isabella's Giraffe Club is a non-profit 501 (c) (3) organization committed to providing emotional and edcational support for parents with infants in a Neonatal Intensive Care Unit. We sponsor events and projects to maintain and improve the quality of care and caring provided to parents and families. We strive to facilitate and enhance communication and mutual understanding of roles and relationships between families and healthcare workers. We offer bereavement programs and support groups for anyone who has suffered the loss of a loved one.Jewish Family & Children’s Service Fragile Beginnings
Fragile Beginnings is a network of initiatives committed to improving the lives of parents of premature infants through direct support services, educational materials, and connections to community resources and to each other. We are guided by the principle that the families of preemies strongly benefit from parenting support beginning in the hospital, during their transition home, and throughout their preemie’s developmental years.
March of Dimes
Mikayla's Grace Inc.
Our mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality. They carry out this mission through research, community services, education and advocacy to save babies' lives. March of Dimes researchers, volunteers, educators, outreach workers and advocates work together to give all babies a fighting chance against the threats to their health: prematurity, birth defects and low birthweight.
Mikayla's Grace Inc. is a 501c3 non-profit to support families with a baby in the NICU and those who experience the death of an infant at Madison Area hospitals by providing NICU care packages and angel memory boxes that offer both practical and emotional support for the parents. Minnesota Preemies
An understanding community for local families of premature babies, whether in the NICU, at home, or in heaven. Miracle Babies
A volunteer driven nonprofit based in San Diego begun by a doctor and father of a preemie that provides support for preemies in the NICU/Neonatal Intensive Care Unit and their families. They primarily provide financial assistance to families in need with newborns in the NICU to pay for items such as copays for durable medical equipment, cribs, medicine, rent, funeral assistance, bus passes, and much more.NoTube
Our experts can help your child learn to eat and drink if it is dependent on enteral feeding and in absence of medical need to continue tube feeding. We also specialize on other post traumatic eating behavior disorders. After using our effective training program, your child will be able to sustain itself by natural oral intake. This unique approach is individually tailored for medically fragile children and offers parents an intensive online support until your goal is achieved.
PreemieCare is a non-profit organization dedicated to supporting families of infants born preterm through education, support, and resources. PreemieCare is a relatively new division of MOST (Mothers of Supertwins), Inc. a non-profit parenting organization that provides information, education, support and additional resources for families of multiples.
Our mission is to provide outreach and support programs to families of infants born prematurely beginning at birth and throughout childhood. They are located in the Washington DC metropolitan area and have local events in Northern Virginia, Maryland, and DC.
Quint Boenker Foundation
Located in Fort Worth, Texas, The Qunit Boenker Foundation funds research to improve the survival rates of premature babies. Donations also go toward bereavement support to cover counseling costs and other needs a family might have who have lost a baby.
Sidelines National Support Network
Sidelines is a 501(c)3 non-profit organization providing international support for women and their families experiencing complicated pregnancies and premature births. Sidelines is committed to providing support, education, and advocacy to women with high-risk pregnancies.
Headquartered in Monrovia, Maryland, Spenser’s Hope provides information on premature birth and a variety of related topics. They also provides preemie quilts for babies in the hospital and Affirmation of Life plaques if a child is lost.The Christopher Joseph Concha Foundation
Waterbury, CT-based nonprofit organization that provides education to parents with premature children, to raise awareness about premature births, and to support research into premature illnesses.
The Tiny Miracles Foundation
A not-for-profit organization (made up of parents of preemies with firsthand experience in the NICU) that is dedicated to helping families of infants born prematurely in Fairfield County, Connecticut.Tube Fed Kids - Deserve to Eat
Connecting Parents of Children with Tube Feeding Issues
Preemie Mom who decided to look at the humorous side and create funny onesies for our little miracles. katfulton
I'm a NICU music therapist. I drum and make music with corporations, older adults, and kids.
Dedicated to improving the quality of life for critically ill and extremely premature infants.
The story of premature twins, Isaac & Molly, born at 24 weeks and how their survival changed a family.
Mom 2 an amazing 27weeker.
After 2 early birds (one 500g 25-weeker and one robust 33 weeker) I've decided to spend more time thinking about NICUs, not living in them.NICUnetwork
Nonprofit Org. Supporting Families of Those Born Premature or Ill. NICU family support, preemie playgroups, organize donations for KC NICUs www.NICUnet.org
Neonatal Intensive Care R.N. launching brand new preemie website to provide information and support to parents of a preemie or baby in the NICU. PreemieHUG
Diplomat College of Physicians(AAIM), Listed Provider on MedEdppd.org, Cert.Breastfeeding Ed., Mind/Body Med.for prevention of pre-term birth, Neonatal Dev. Sp.
OB/GYN and mom of two 26 week boys. Author of The Preemie Primer. My tweets are not medical advice.tinysurvivor
wife to my best friend and mom to a micropreemie miracle (1 lb., 8 oz. at 26 weeks), contributor at Preemie Babies 101, teacher (on hiatus), photographer
I have been through the NICU twice & want to give something back by raising awareness of prematurity.