Graham’s Story

Jenn holding Graham with Nick

Jennifer and I always thought that when we were ready to start our family it would come easily. Unfortunately it didn’t happen that way for us.  After six years of hope and frustration, the typical infertility procedures had still proven unsuccessful.  Still determined, we met a caring a compassionate doctor, Dr. Arthur Wisot, and after our first round of IVF we learned we were finally pregnant.

After the first ultra-sound the doctor was confident that we had one baby but he thought there might be another.  The next ultra-sound confirmed it.  We were expecting twins! Everything was progressing nicely until about 22 weeks when Jenn developed pre-eclampsia.  Jenn was put on immediate bed rest. Jenn did everything she could but unfortunately with her escalating blood pressure the neonatologist said we had to deliver immediately.  Our daughter and son, Reece and Graham, were delivered on Thanksgiving day, November 23, 2006 by emergency C-section at 25 weeks and 3 days gestational age.

After Jenn’s discharge from the hospital, she remained on bed rest for six weeks.  I spent day and night at the NICU and took Jenn back and forth, as she was only allowed to be there for brief periods.

Graham had an incredibly difficult journey.  Our intuition knew that his time with us, during this lifetime, would be brief.  Graham was with us for only 45 days, and we are grateful for every moment.

When we look back, Graham had only one truly good day.  It was the one and only day that Jenn was able to hold him.  He was still on a ventilator at the time. Jenn and I remember our nurse telling us at least three times that day, “Graham definitely knows that his Mom held him today.  He definitely knows.”  It turned out to be just days before we had to say good-bye.

Family and friends from around the country joined us to celebrate Graham’s life.  There were at least a dozen NICU staff in attendance as well.  Having them there with us meant the world.  We released 45 blue and white balloons at the service to remember Graham.

While Graham isn’t with us today in body he will be with us forever in spirit.


Supporting Preemie Parents in Difficult Times

As we work together through these challenging times, you may have questions about how Graham’s Foundation is supporting our preemie parent community. Fortunately, because our support programs have always been delivered virtually, we are equipped to deliver all of our programs today, tomorrow, and into the future to continue to meet the psychosocial needs of parents.

Our Care Packages offer helpful tips for self-care and navigating the NICU and going home (our supplies have been in stock since before the COVID-19 outbreak), our MyPreemie app provides critical preemie-related information and helps parents journal their NICU experience, and our three dozen trained mentors are available to lend an ear and offer words of advice and encouragement.

In such a difficult time, it is more important than ever that we are here for the most vulnerable members of our community and Graham’s Foundation is ready. We are grateful to our volunteers and the individuals and industry partners who make generous donations that enable us to develop and deliver our support programs.

In Gratitude,

Nicholas Hall, Founder

Graham’s Foundation