by Erica Johnson The Beginning Having a child is filled with peaks and valleys. Having a preemie is filled with those same peaks and valleys, but having a micro-preemie sometimes the valleys outweigh the peaks. My lovely daughter Avery was born at 25 weeks 3 days gestation. She is my first born and of course […]
Written by Katie Hannigan You hear a lot about breastfeeding, but not often abut how hard it is. We are led to believe that it is easy because it is the natural way. It shouldn’t require any effort. But the test results have determined that is a lie. This is even more true when it […]
I am very excited to be partnering with Graham’s Foundation. My son Carter was born at 10 weeks premature, at 30 weeks and 1 day. He was 3 pounds 11 ounces and was 16 ¼ inches long. I was terrified about whether he would be okay and what implications this would have for the rest of […]
My husband and I were stunned that we were having twins, but nothing could have prepared us for Thomas and Colin’s early birth at 24 weeks, 6 days. My placenta ruptured and the boys arrived unprepared to come into the world. One had a stage 3 brain bleed on his left side. The other had […]
Today’s post comes from preemie mom Samantha. She’s a stay-at-home mom to two children, Cooper and Evynne, and is currently finishing up her Master’s degree and looking forward to the next chapter in her journey. Cooper was born at 32 weeks and is now 12 years old. This is their family’s premature birth story: When […]
Cold and flu season is here and for parents of preemies, this season can be hugely terrifying. Many refer to this time of year as a “lockdown” time when we do all we can to keep our preemie away from germs in order to keep them healthy. We asked our preemie parent mentors […]
As the mom of a preemie born in the thick of cold, flu, and respiratory syncytial virus (RSV) season, it used to drive me crazy when people would tell me I needed to expose my daughter to germs to strengthen her immune system. These were well-intentioned people who just didn’t know that infections considered easily […]
The people in your life may offer you an amazing amount of sympathy and support when your family is in the NICU after premature birth. After all, it’s easy for them to see that your newborn or infant has needs that are different from those of a full-term baby when your family is being cared […]
This guest post by Jesse Reiter addresses an important part of the preterm birth experience – the trauma that parents of preemies face in the NICU and how that trauma can leave lasting scars that may not simply fade away with time. It was originally published here and is republished in full below with permission […]
The micropreemie journey can be like walking through a minefield for both preemies and their families. The moms and dads of the earliest babies celebrate not only the milestones, but also the minutes. Every hour in the early days is hard won. Every milestone met, a triumph. A micro-preemie parent’s courage and resilience may be […]
Emily is our mentor for Life After NICU. She's available to support parents who are on the preemie journey beyond the NICU.
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Our mission is to provide support to parents of premature babies.
