Bronchopulmonary Dysplasia (BPD) Collaborative

February 3, 2016 by

This call is being led by Dr. Nelin at Nationwide Children’s. The BPD Collaborative is a collection of 9 centers in the US that have multidisciplinary teams dedicated to optimizing outcomes of infants and children with severe BPD. Its mission is improving the life-long outcomes of babies who develop severe BPD by fostering collaboration and innovation in the identification and treatment through the sharing of data, the development and implementation of quality improvement initiatives, as well as fostering research protocols to address the most pressing gaps in our knowledge.

The hope with the call is to begin to interact with parents of patients with severe BPD to get their input on direction, priorities for clinical care and research, etc.

Join by phone:
(614) 355-5333
(855) 888-5439 (Toll free)
*Conference ID: 3196805

We are looking forward to the call and to the development of a parent’s advisory group for severe BPD.

You can RSVP to the call via the Facebook page: https://www.facebook.com/events/877545099010415/

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About The Author: Laura Martin

A former middle and high school chorus teacher, Laura B. Martin is the Director of Parent Communication and Engagement at Graham’s Foundation. She is mom to Joseph, Campbell, and Emily. Joseph and Campbell, fraternal twins, were born at 24 weeks gestation. Campbell lived for 23 beautiful days. Joseph spent 228 days in the NICU and experienced a near fatal bout with NEC that left him with Short Bowel Syndrome. Joseph faces many complications as a result of his extreme prematurity. He has a g-tube, auditory neuropathy, hypotonic cerebral palsy, asthma, vision impairment, hypothyroidism, Eosinophilic Esophagitis, and multiple food allergies. Even still, he is a happy and active child. Laura, her husband, Scott, Joseph, and Emily live in the South. Laura can be reached via email .

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