To the Mothers Who Donate Their Breast Milk
To the mothers who donate their breast milk: I want you to know that your efforts were not in vain! There are mothers out there who are thankful… like me.
Preemie Moms Talk About When They Felt Like Parents
Your role as a parent in the NICU is unique and irreplaceable, but it doesn’t always feel that way. When your preemie is ill, it can seem like it’s the doctors and nurses who are playing the number one role in your baby’s life while you watch from the sidelines. Many parents of preemies feel […]
Receiving a diagnosis in the NICU
When our twin boys were born at 24 weeks gestation, we knew we had a long road ahead of us. As each day passed, we learned more and more about the NICU and that our stay would be much more complicated than just watching our baby grow. While it is everyone’s hope that their child’s […]
Nick Hall Shares His Vision for the International Neonatal Consortium
Graham’s Foundation president and preemie parent Nick Hall recently shared his vision for the International Neonatal Consortium (INC) in the organization’s inaugural newsletter. You can read Part I here: Part I and Part II of Nick Hall’s interview will be available at the INC web site (https://c-path.org/programs/inc/).
What Parents Think About Clinical Trials in the NICU
Over the years, Graham’s Foundation’s mission has evolved to include advocacy on behalf of parents of preemies – behind the scenes, we’re not only championing family-centered care in NICUs but also finding the data to back it up. One area that hasn’t been thoroughly looked at is clinical trial participation in the NICU. Obviously parents […]
Deanna Fei on How Distressed Babies are Our Babies and the Inspiration Behind Girl in Glass
In October 2012, my second child arrived nearly four months premature. She weighed one pound, nine ounces. None of her vital organs were ready for the world outside my body. Her face and body were obscured by tubes and wires. Her skin was reddish-purple and not quite intact; one doctor described it as “gelatinous.” The […]
Increased Investment in Preemie Outcomes is Throwing Good Money after Good
There’s no denying that prematurity is an epidemic. Across the globe, the rate of preterm birth ranges from 5% to 18% of babies born too soon. Globally, prematurity is the leading cause of death in children under the age of 5. And in almost all countries with reliable data, preterm birth rates are increasing. It’s […]
The Importance of Speaking Up
My 32-week preemie is now a full-fledged toddler, walking about and getting into mischief. He throws all the books from their shelves, dumps the toys from their buckets, and has a habit of running away with freshly folded laundry. He does a lot of the typical toddler things, but he stands out among his peers. […]
Preemie Parents, Trust Your Instincts
So these past few weeks have been tough. We noticed that Dusty isn’t quite where other children his age are developmentally. I guess that’s one of the parts of having a preemie. We made the decision to schedule a reevaluation for him with the rehab center he went through when he was first born. I […]
Honoring the Ripples of Graham’s Life
It’s been 8 years since Jenn and I said good-bye to Graham and yet the tears pour as I think about what our lives would have looked like as a family of four and what Reece’s life would have looked like with a twin brother. They say time heals all wounds, but losing a child […]
