Preemie Parent Voices

Balance of Parenting Non-Living Children

Balance of Parenting Non-Living Children

by Michelle Valiukenas As a mother to no living children, some of the absolutely hardest things I have done is to continue breathing after losing Colette.  It may seem a tad melodramatic, but it is true because parenting a child that you cannot see is a constant struggle of keeping her memory alive, her presence in […]

Life After Discharge

Life After Discharge

by Ali Dunn From the moment my twins were born at 28 weeks and admitted to the NICU, my first thought in the morning and my last thought at night was when will they come home. I just wanted it all to be over. After struggling for 3.5 years with infertility, I was tired of […]

Let Yourself Grieve

Let Yourself Grieve

by Maegan Sheiman NICU parents are no strangers to grief.  In an instant, we are forced to take in the feeling of loss in so many forms it seems impossible to balance.  As we watch our little ones’ struggle, we grieve their pain.  We grieve missing that magical birthing experience.  The moment when the doctor hands you your baby, […]

Friends, Stop Apologizing

Friends, Stop Apologizing

by Kristina Mulligan Whenever I am discussing my son’s need for Early Intervention Services or any of his diagnoses with a peer, usually the first words out of their mouth is “I’m sorry.” And you know something? I’m likely guilty of this, too. It’s an instinct and sometimes the words just come out before you can […]

Bringing Home one Preemie Twin Before the Other

Bringing Home one Preemie Twin Before the Other

By Jessica Whiteman “Bittersweet” is the main word that comes to mind on the day we took Jack home before Owen. While we were thrilled to get Jack home and away from the NICU, it felt wrong. Wrong having to take him away from his brother who had been with him since the womb. Wrong […]

Things Preemie Parents Don't Want You to Know (But You Should..)

Things Preemie Parents Don’t Want You to Know (But You Should..)

by Kristina Mulligan Life as a preemie parent is a journey like no other. It’s filled with so many obvious difficulties, but also various hidden struggles that are unexpected and that people may not consider. It’s an ongoing battle with many stages throughout a parent and child’s life, mentally, emotionally, and physically. Here is what […]

Self Care Tips for the NICU Parent

Self Care Tips for the NICU Parent

by Maegan Sheiman The NICU is not exactly a place of rest and relaxation.  As a parent of a NICU baby it can feel like you are constantly drowning in a sea of uncertainty, stress, sleep deprivation, medical terminology and emotional turmoil. All of this can pile on quickly, if not all at once, and it is […]

Coping with Life Outside the NICU

Coping with Life Outside the NICU

by Erica Johnson The Beginning Having a child is filled with peaks and valleys. Having a preemie is filled with those same peaks and valleys, but having a micro-preemie sometimes the valleys outweigh the peaks. My lovely daughter Avery was born at 25 weeks 3 days gestation. She is my first born and of course […]

Interview with a Preemie Dad

Interview with a Preemie Dad

by Kristina Mulligan As a preemie mom, I’ve had the opportunity to be relatively vocal about our family’s experiences in the NICU and beyond, but my husband, DJ, hasn’t necessarily gotten to do the same. I decided to sit down with him and ask some important questions to give him his own voice, and to […]

NICU Dads - Thank You for Being Superheroes!

NICU Dads – Thank You for Being Superheroes!

by Lindsay Nolan I was scrolling through Instagram at about 3 a.m. while my husband, Danny slept on the couch next to me. My internal clock was a bit off; the NICU does that to you. It was about two weeks into our stay at the hospital and I was deciding on which filters to […]