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Graham’s Donation Form

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Dedicate this Donation

Honoree Details

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This is a secure SSL encrypted payment.

Donation Total: $10.00 Monthly

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retinopathy of prematurity (rop)

Caring for a Preemie with a Trach

Caring for a Preemie with a Trach

By Lorena Vasselo on March 28, 2018

My preemie Malena Lola was born at 25 weeks gestation and weighed 1.6 lbs. She spent almost 8 months in the NICU at the Alberta Children’s Hospital in Calgary, Canada. During this time I spent every day with my baby girl – I would arrive at the hospital very early in the morning and stay […]

Categories: Bringing Preemie Home, Life After NICU, Lung/Breathing Issues, Parenting Preemies, Preemie Issues, Preemie Parent Voices, Retinopathy of Prematurity
Tags: 25 weeks, patent ductus arteriosus (pda), retinopathy of prematurity (rop), tips for preemie parents, tracheotomy
Clinical trials and the parent perspective

Clinical trials and the parent perspective

By Laura Martin on January 15, 2016

Most parents of preemies know that surfactant (a substance that keeps air sacs in the lungs inflated) helps premature babies breathe but far fewer know that clinical trials helped make surfactant part of standard preemie care. Graham’s Foundation recently collected data directly from 194 mothers and fathers of preemies in seven different countries* to learn […]

Categories: News
Tags: clinical trials, retinopathy of prematurity (rop)
A Preemie Grandparent's Perspective

A Preemie Grandparent’s Perspective

By Gay Molise on August 2, 2014

This post was written by Gay Molise, our Grandparent Mentor volunteer. For more information on how to connect with another preemie grandparent, see below. I have a great deal of experience with pregnancy, childbirth and loss. I am a parent of two living children, four children who are in heaven, and grandmother of two little […]

Categories: Grandparents of Preemies, Multiple Preemie Journeys, Preemie Parent Voices
Tags: patent ductus arteriosus (pda), retinopathy of prematurity (rop)
Far From Home and from Hope: A Navy Nurse's Prematurity Journey

Far From Home and from Hope: A Navy Nurse’s Prematurity Journey

By Featured Parent on June 8, 2014

I would like to share the story of my son’s journey into this world as an effort to provide courage, strength, and a sense of hope for other parents. I’m an active duty Navy Nurse, with my primary area of specialty being ER and Peds. I see a lot of tragedy and pain every day […]

Categories: Life in the NICU, Preemie Parent Voices
Tags: 24 weeks, birth stories, intraventricular hemorrhage, nicu staff, preeclampsia, retinopathy of prematurity (rop), Stories Along the Preemie Journey
Understanding Prematurity - A Day in the Life of a Preemie with IVH and ROP

Understanding Prematurity – A Day in the Life of a Preemie with IVH and ROP

By Heather McKinnis on November 21, 2012

Our Preemie Parent Concierge, Heather, helps parents every day deal with the stress and anxiety of the NICU, but she handles this issues with grace and ease, because she’s also been there. Here is Heather’s story of prematurity and information that you can share on two common preemie “issues” – IVH and ROP that were […]

Categories: Intraventricular Hemorrhage, Preemie Parent Voices, Retinopathy of Prematurity
Tags: 25 weeks, birth stories, intraventricular hemorrhage, retinopathy of prematurity (rop)

A Story of Quads, Pt. III

By Featured Parent on October 3, 2011

And finally we come to what is not the end of the quads’ story, but just the beginning! Today, they’re doing great, as you’ll read below. (Read Part I, Part II) Wyatt’s story was even rockier than his brother’s! Wyatt did remarkably well for the first week, which was amazing since he was the smallest […]

Categories: Grandparents of Preemies, Intraventricular Hemorrhage, Preemie Multiples
Tags: fundraisers, multiples, quadruplets, retinopathy of prematurity (rop)
A Story of Quads, Pt. I

A Story of Quads, Pt. I

By Featured Parent on September 19, 2011

Today’s blog post was written by Tim Spillane, a grandparent who has dealt with extreme prematurity. His daughter, Anne, became pregnant with quadruplets, and from the start, the family knew they’d be facing the trials of severe prematurity. Yet even so, foreknowledge doesn’t always prepare moms, dads, grandparents, and care providers for the realities of […]

Categories: Grandparents of Preemies, Preemie Multiples, Retinopathy of Prematurity
Tags: hellp syndrome, multiples, patent ductus arteriosus (pda), preeclampsia, quadruplets, retinopathy of prematurity (rop)

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SOBI - Rare Strength

We are grateful to SOBI, a proud education partner of Graham’s Foundation and sponsor of the MyPreemie app. SOBI’s generous gift helps make it possible for us to continue to provide support and informative resources to parents of preemies around the globe.

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