Preemie Parent Mentor, Amy A., shares the story of her preemie’s experience with RSV.
Once we left the NICU with Justin, our 23 week micro preemie, we knew we weren’t “out of the woods” but we were so grateful to have made it out. There were definitely countless times during our three and a half month NICU stay when we were not sure whether we would be taking Justin home. We were discharged with countless instructions and referrals to specialists. In preparation for his discharge, Justin received his first injection of Synagis – an injection of antibodies given monthly to protect high risk infants from severe RSV disease during the RSV season. It is like a vaccine but technically it is not a vaccine. We were instructed to follow up with a pulmonologist who would administer the rest of the injections that our insurance would cover. Considering Justin was born at 23 weeks and the severity of his lung disease, we were covered for five more months of synagis shots. Justin was discharged in August so we received synagis injections for the Fall months and most of the Winter months when RSV season is at its peak.