Support Groups & Organizations

Caiden's Hope, a federally recognized 501(c)(3) charitable organization is dedicated to helping provide travel arrangements for families enduring the hardship of a child undergoing long term medical care in a hospital neo-natal intensive care unit.

Calvin’s Hats are hand knit for babies who are born too early to survive. When we lost our son, Calvin, we discovered there is little clothing tiny enough for babies that are born too early. Although the hospital offered us preemie-sized hats for our son's small head, they were still too big.

CaringBridge websites offer a personal and private space to communicate and show support, saving time and emotional energy when health matters most. Learn more about creating your own website that gives recognition to Graham’s Foundation.

CCPOM is a wonderful network of caring parents who have taken on the role of raising twins, triplets, quadruplets and other higher-order multiples. We offer support, grown up activities for just parents and of course fun activities for kids!

Fragile Beginnings is a network of initiatives committed to improving the lives of parents of premature infants through direct support services, educational materials, and connections to community resources and to each other. We are guided by the principle that the families of preemies strongly benefit from parenting support beginning in the hospital, during their transition home, and throughout their preemie’s developmental years.

An understanding community for local families of premature babies, whether in the NICU, at home, or in heaven.


A volunteer driven nonprofit based in San Diego begun by a doctor and father of a preemie that provides support for preemies in the NICU/Neonatal Intensive Care Unit and their families. They primarily provide financial assistance to families in need with newborns in the NICU to pay for items such as copays for durable medical equipment, cribs, medicine, rent, funeral assistance, bus passes, and much more.

San Diego, CA

The NEC Society is a non-profit organization, made up of a diverse group of healthcare practitioners, researchers, and families from across the country who seek to protect premature infants from necrotizing enterocolitis (NEC). NEC is a devastating intestinal disease that affects thousands of premature infants every year in the United States. Through education, outreach, research, and advocacy, we are committed to reducing the incidence of necrotizing enterocolitis.

I am launching a complimentary NICU photography program, effective 10/4/2019, called Noah's Gifts. This is not a non-profit, it’s not affiliated with any charity, and it’s not an extension of any hospital. It’s an extension of premature baby (Matthias Noah Lewis), my experience as a NICU mom, and my heart to give. This is the most perfect way for me to help preemie newborns and their families get through what I've gone through.

Toledo, OH

The Preemie Parents Foundation is a non-profit (501C3 - pending) organization dedicated to providing the parents and caregivers of premature babies with the tools, resources and support needed to take this unexpected journey from a place of bewilderment to a place of empowerment

Our mission is to provide outreach and support programs to families of infants born prematurely beginning at birth and throughout childhood. They are located in the Washington DC metropolitan area and have local events in Northern Virginia, Maryland, and DC.

Washington, DC

Sidelines is a 501(c)3 non-profit organization providing international support for women and their families experiencing complicated pregnancies and premature births. Sidelines is committed to providing support, education, and advocacy to women with high-risk pregnancies.

Headquartered in Monrovia, Maryland, Spenser’s Hope provides information on premature birth and a variety of related topics. They also provides preemie quilts for babies in the hospital and Affirmation of Life plaques if a child is lost.

A not-for-profit organization (made up of parents of preemies with firsthand experience in the NICU) that is dedicated to helping families of infants born prematurely in Fairfield County, Connecticut.

Fairfield County, CT

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About The Author: Laura Sultan