Preemie mom, Heather, shared a video she put together of her son’s journey in the NICU. Leon was born at 28.4 gestation and spent 69 days in the NICU. It is quite the inspirational video!
A former middle and high school chorus teacher, Laura B. Martin is the Director of Parent Communication and Engagement at Graham’s Foundation. She is mom to Joseph, Campbell, and Emily. Joseph and Campbell, fraternal twins, were born at 24 weeks gestation. Campbell lived for 23 beautiful days. Joseph spent 228 days in the NICU and experienced a near fatal bout with NEC that left him with Short Bowel Syndrome. Joseph faces many complications as a result of his extreme prematurity. He has a g-tube, auditory neuropathy, hypotonic cerebral palsy, asthma, vision impairment, hypothyroidism, Eosinophilic Esophagitis, and multiple food allergies. Even still, he is a happy and active child. Laura, her husband, Scott, Joseph, and Emily live in the South. Laura can be reached via email .
As we work together through these challenging times, you may have questions about how Graham’s Foundation is supporting our preemie parent community. Fortunately, because our support programs have always been delivered virtually, we are equipped to deliver all of our programs today, tomorrow, and into the future to continue to meet the psychosocial needs of parents.
Our Care Packages offer helpful tips for self-care and navigating the NICU and going home (our supplies have been in stock since before the COVID-19 outbreak), our MyPreemie app provides critical preemie-related information and helps parents journal their NICU experience, and our three dozen trained mentors are available to lend an ear and offer words of advice and encouragement.
In such a difficult time, it is more important than ever that we are here for the most vulnerable members of our community and Graham’s Foundation is ready. We are grateful to our volunteers and the individuals and industry partners who make generous donations that enable us to develop and deliver our support programs.
Nicholas Hall, Founder