We need YOUR help!

March 21, 2016 by

On Wednesday, March 23 at 8:00 pm EST, a parent-led webinar will occur to inform the preemie community on how they can become involved in supporting the Promoting Life Saving New Therapies for Neonates Act (S. 2041). It has been over 25 years since a new drug was approved to aid in the positive outcome of premature infants.

Your help is needed to support this legislation!

You can find out more about the initiative here: www.newbornhealth.org.

You can register for the webinar here: http://www.newbornhealth.org/news/webinar-the-need-for-new-therapies-in-the-nicu-and-what-you-can-do-to-help

Categories: Preemie Parent Voices
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About The Author: Laura Martin

A former middle and high school chorus teacher, Laura B. Martin is the Director of Parent Communication and Engagement at Graham’s Foundation. She is mom to Joseph, Campbell, and Emily. Joseph and Campbell, fraternal twins, were born at 24 weeks gestation. Campbell lived for 23 beautiful days. Joseph spent 228 days in the NICU and experienced a near fatal bout with NEC that left him with Short Bowel Syndrome. Joseph faces many complications as a result of his extreme prematurity. He has a g-tube, auditory neuropathy, hypotonic cerebral palsy, asthma, vision impairment, hypothyroidism, Eosinophilic Esophagitis, and multiple food allergies. Even still, he is a happy and active child. Laura, her husband, Scott, Joseph, and Emily live in the South. Laura can be reached via email .

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